Epilepsy Links

The Epilepsy Association of Utah
The Epilepsy Association of Utah is a 501(c)(3)charity providing awareness, education, support services and advocacy for, and on behalf of, all those living with and affected by the many challenges of epilepsy/seizure disorders.
http://www.epilepsyut.org

American Epilepsy Society
The National Association for the Study of Epilepsy and the Care and Treatment of Epileptics was organized in New York in 1898 under the guidance of William Pryor Letchworth, L.L.D. and Frederick Peterson, M.D. Membership was for "any person interested in the scientific study of epilepsy, or in the study of ways and means to improve the condition of epileptics, or in sociological subjects generally."
http://www.aesnet.org/

Angelman Syndrome Foundation, Inc.
The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties.
http://www.angelman.org/

Coping With Epilepsy
CWE aims to provide a forum for people living with epilepsy (both people with epilepsy and those who live with or care for people with epilepsy) to discuss epilepsy, seizures, medications, treatments and all aspects of living with and coping with the disorder.
http://www.coping-with-epilepsy.com/

Epilepsy.com
The Epilepsy Therapy Project
Founded in 200 by Warren Lammert, Father to daughter, Slyvie who has Epilepsy and Dr. Orrin Devinsky amongs others, including their Editor and Chief, Epilesy.com’s mission is to accelerate ideas into therapies for people living with epilepsy and seizures.
http://www.epilepsy.com/

Epilepsy Phenome/Genome Project
EPGP is an NINDS study looking for siblings who both have epilepsy, and people who have been diagnosed with Infantile Spasms, Lennox-Gastaut Syndrome, Polymicrogyria, Periventricular Heterotopia.
http://www.epgp.org/

IDEA League
The International Dravet syndrome Epilepsy Action League (IDEA League) is a non-profit organization comprised of hundreds of determined parents and leading medical experts committed toadvancing the care, treatment and quality of life of children and adults with Dravet (Dra-vay) syndrome and related forms of epilepsy through advocacy, education, research and support. We are the only organization in the world devoted specifically to this important mission.
http://www.idea-league.org/

International League Against Epilepsy
The International League Against Epilepsy (ILAE) was founded in 1909 and is an organisation of more than 100 national chapters. The goals of the ILAE are to advance and disseminate knowledge about epilepsy, promote research, education and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.
http://www.ilae-epilepsy.org/


LGS Foundation
The LGS Foundation is a nonprofit organization dedicated to providing support and information about Lennox-Gastaut syndrome while raising funds to help pursue additional research and services for LGS families. Started in 2007 by the sister and mother of an adult man with Lennox-Gastaut syndrome, the organization has grown to an international network of families affected by LGS.
http://www.lgsfoundation.org/


National Institute of Neurological Disorders and Stroke
The mission of the National Institute of Neurological Disorders and Stroke is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
http://www.ninds.nih.gov/

SUDEP Aware
SUDEP Aware's mission is to promote knowledge and understanding of Sudden Death in Epilepsy (SUDEP) through education, research and support.
http://www.sudepaware.org/


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The Epilepsy Information Network
1-800-642-0500

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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