Bad year...go away

>> Thursday, May 26, 2016

I haven't blogged for a very long time.

Because Dad died.

In December he came for Christmas, by January he had a cancer diagnosis and began chemo and was dead mid-March. Our world turned upside down. Again. I miss him more than I have ever missed anyone before. He was a great man. A great man that everyone knew but no one ever knew. That helped everyone yet no one helped him because he wouldn't ask. He was a quiet man with a loud voice, at times. And he loved his children, grandchildren and great grandchildren. My heart is broken still and while Dad was dying...

Bug got worse. He developed gagging episodes. We talked to his Doctor and suspected new seizure types but he eventually stopped responding to rescue meds. Rescue meds at triple the dose still did not work. It was a very rough time. So we had another option for the cause of the gagging and we decided to treat him with Zantac. It helped. Nearly immediately. And his nightly seizures seemed to stop. For almost a week we had no gagging and only four seizures.

Until today.

Today he had 4 seizures in 4 hours. And it made me miss my Dad even more. Bug is better now, seemingly happy and energetic, but for how long? I hate waiting for that show to drop.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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