>> Sunday, November 15, 2015
Get ready to be insulted, angry and sad. If you aren't, go away and come back when you grow a heart.
First, let's cover the Bugster: Bug is doing well. He is almost having NO seizures during the waking hours still. In the last week we have seen less than 3 total during the day. But the night is back to being the enemy. He is happy, spinning and smiling and jumping. No idea what the jumping is about but I just hope he doesn't break a foot. He IS doing something he hasn't done much of since he was two: climbing.
He will climb on to the table, the desk, the kitchen counter and just sit there. While it's cute, it can also be dangerous should he seize. Tonight, he climbed on the kitchen counter and unscrewed a light bulb. Huh? Not sure why, maybe it was too bright. For whatever reason, he is expanding his repertoire and I like it.
What set me off was this statement relayed to me:
You need to think about how the nurses feel. They are afraid, This is real fear about losing their license.
In the State of Utah, school Districts have the discretion to refuse, get that...REFUSE to administer any rescue medication (and in some they can refuse daily antiepileptic doctor-prescribed medication) for seizures. They can say: I know your doctor said he/she needs it, but...we disagree so good luck. A District can override a doctor. It appears 'first do no harm' applies to the doctor, not the school. A nurse can also override a doctor, a school principal, with NO medical training whatsoever, can override a doctor. Utah State Office of Risk Management has said: There is no reason why you can not administer or delegate the administration and not feel secure in doing so.
The nurses present said: We don't believe you. Check lawyers off of the 'allowed to override' list.
Our Executive Director left one meeting and said: "Wow, do I feel devalued. As a person with epilepsy, I am sad to know what they REALLY thought of me when I was in school".
It's THIS simple: If you have a 504 or Health Care Plan that details the medication that should be delivered to the student, how and when it should be delivered, then do it. Parent's have gone through the Health Care Plan process to ensure their child is safe and according to FEDERAL law, you do NOT have the right to arbitrarily change it. We make accommodations for students with diabetes and allergies but we tell student with seizures they have to stay home.
Does that piss off anyone else or is it just me?