>> Tuesday, August 25, 2015
Last night was one of those nights where sleep wasn't even a suggestion for the majority of the time. After a calm week of three seizures, Bug kicked it off with two Tonic/Clonic's from hell. Followed up with 3 Tonics by Midnight and that won him a Clonazepam chaser. He twitched until 1AM at which point he slept until 3:30 with no events. I thought we had stopped them but that was not the case.
From 3:30 to 6:30 he had 5 more. Short Tonic's with a lot of drooling.
This morning, I am beyond sad for my boy. I hate the universe and everything in it.
It's especially crappy because he is so much happier and more engaged and then...now I just wonder what he lost, if he lost anything and how sore and miserable he is going to be today.
Not kidding about the hate thing.