For reals....

>> Wednesday, June 17, 2015

Another week.

I can not make this up even if I wanted to.

We know that Bug has a pretty big genetic boo boo, we need confirmation and, there has been a delay.

If you have been reading this Blog for a few years off and on, you KNOW this happens to us ALL THE TIME. ALL. THE. TIME.

Just when we think we are there, we have some answers, there comes a delay. It's as if the Universe does not want us to know. As if we have to earn it, it's too special.

This entire week has left me at a loss, mired in the knowledge of the lack of understanding. The completion of 8 years of looking. I sound greedy, and yes, I am. His diagnosis is sitting on a computer hard drive having algorithms run against it. Oh, the irony. All these years and it's technology that brings us the farthest, technology that Glenn and I could probably recreate!

I was thinking today, not that I do that much, but I thought: Bug has trisomy traits. But does not have a Trisomy mutation. He has A LOT of Trisomy markers. But he is a Genetically Normal Male. Oh yeah? Wanna bet? So if he has these traits but does not actually have the mutation maybe the mutation he has is a primordial version of it. Maybe he holds an answer.

I also wondered about the Stem Cells.

When Bug's little brother was born two years ago, we elected to bank his cord blood. We were called by the President of the Company that is holding the goods for us and he said: Normally we get about 100,000 to 300,000 but from yours we got over 1,000,000. So these stem cells...can they be used to help Bug? It's something I am looking into. The possibilities...if we can ever get the results...are that which dreams are made of.

Could we cure Bug?


Post a Comment

What a Seizure looks like (Graphic Content Included)



Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

  © Blogger template Simple n' Sweet by 2009

Back to TOP