Little more than nothing.

>> Sunday, May 17, 2015

Do you ever feel like no matter what you do, life has other plans? No matter how much diligence, effort, study and action you engage in, it means nothing to the universe? Yea, me too.

Bug's seizures have been within baseline, it's his mood. He is lethargic, melancholy, smiling only every so often and when he does, it doesn't last much longer than 30 minutes. It's as if he is sick, without being sick and he is wearing 100 pounds of weights. He is walking with his knees slightly bent and I find myself wondering if he has something broken. He just lays on the ground and watches me, or watches television or half-plays with a toy, nothing 'little boy' about him, more like old man. I hope it's nothing to worry about but my Mommy sense tells me: something is amiss. Most likely, it's allergies or something along those lines and my Mommy sense is full of it. I am often full of it. It's my natural state.

He goes to the Doctor tomorrow. Hopefully, we can get all the tests I want him to have and we can get some answers or at least a direction. Long night ahead, followed by 'normal' or 'within range' and I will fade into silent misery with concern about what we are missing.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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