When Bug is sick.

>> Thursday, October 23, 2014

When Bug is sick, the whole world stops for a few days. He doesn't eat, he sleeps a lot (which means that when he feels better he won't sleep almost at all) and he can't tell us if he is going to puke. So, he just sits there and vomits. Which means antiepileptic medications are next to useless. We still give them to him, sometimes they stay down and other times...they end up on my lap. And we don't double dose, that can be dangerous.

He doesn't quite know how to handle it either, which is so difficult to watch. Most kids whine and complain a little, they keep playing off and on and they fight the administration of the medications and then sleep it off. He silently begs us to make it go away, there is no explaining that helps him, he just reaches out for help and we can not provide more than some attempt at comfort. Cold medicines are supposed to be avoided because they can lower the seizure threshold. Get that? They can make him seize more. Over the counter. It's mostly the antihistamines but those are the only things that help him. So we give them sparingly.

He tries to play with things that bring him joy, but he can't always figure out how they work, when he is sick. Why is that? I have no clue. He can't even find comfort in his favorite toys.

The past two days have been ugly for him. Only a few seizures but a ton of feeling crappy. He hasn't really had a fever, he just feels warm for a few hours and then is normal again...well...his normal anyway. That 'not quite' a fever thing has got to really feel horrible. I wish I knew.

He ends up just looking at us with pleading eyes and we can't really do much other than what we are doing: trying to keep him hydrated, cuddle when we can and just be there when he needs anything. He really is the saddest little man when he is sick and it breaks my heart it lasts so long, but not a lot to do except wait it out.

That seems to be the motto for his life: Wait and see.

And pray it doesn't make him worse.


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What a Seizure looks like (Graphic Content Included)


Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

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Diamond Potential Awareness Award
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