What I have come to realize...

>> Friday, February 14, 2014

Throughout this legislative advocacy, I have learned a few things:

Relationships are fickle things that can be made and unmade based on opinion and perception.

Truth is not as important as hype.

My son is STILL being overlooked.

He is NOT as important as public perception, even though that perception is a lie.

The medications he takes to stop his seizures are the number one cause of an overdose trip to the Emergency Room. Get that one? Benzo's...not CBD. If one more Doctor tells me that it is unsafe and needs to be studied, I swear to everything I will unleash an unholy tirade designed to destroy a human being. http://www.cdc.gov/homeandrecreationalsafety/overdose/facts.html

There are members of the House that do NOT care about their constituents and would 'have to think about' whether or not they would actually give their child an antiepileptic drug let alone High-CBD/Low-THC. Yes, that means they might just let them seize until they die. True story...to my face.

What good is air quality if my son is not breathing?

There are some really beautiful people in the world.

Ugliness is sometimes wrapped in Prada and has an MD.

Lies are only as good as people are willing to believe.

In Utah, people will believe anything wrapped in expensive paper.

Death...is NOT a motivator but greed is.

The people that say I am being selfish...want something for themselves.

There are some beautiful people in the world.

We have a great Doctor.

I have some fabulous friends.

The community DOES care about Bug.

I am a natural cynic.

BUT

There are some really beautiful people in the world.


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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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