>> Saturday, February 8, 2014
For me, he was 2.
At the age of 2 he had his first seizure and so began the next 9 years of hearing:
It's very unfortunate to see.
It's just Autism, I can stop the seizures but you will have to go somewhere else for the behavioral issues.
It might just be a case of 'bad brain' and you will have to learn to live with it.
We trusted the medical community and we still do, cautiously. But I have NOT had real control over the decisions to the health and well being of my child since he had that first seizure. His seizures were made worse by some of the medication we tried. And I had to sign TWO waivers saying that I would watch carefully for a life-threatening rash. As I read the long list of side effects that these medications cause I saw things like: Sterilization, blindness, liver failure, and death. And yet, I opened his mouth and put the pill in. No parent should have to think they may be killing their child while trying to help them.
We repress these possibilities, we do not dwell on them but this legislative endeavor has brought them all forward.
I am STILL turning my son's health over to someone else. A body of 10 people will most likely decide what is best for him.
And I can do very little about it because some are more interested in perception. Seriously...how it appears? THIS is YOUR concern? Pretty heartless and reckless isn't it?
I met a man who said he was speaking for me because I was being taken advantage of in a very stressful and delicate situation. Me? Really?
This man told the legislators this as well. He has a PhD. So they will listen to him. He doesn't care about my son. All the Doctors I begged for tests and denied me, they didn't really care either. And the legislators on Capitol hill don't care. Not really. And they don't care because the federal government called this plant Marijuana before they called it Hemp. And they DID call it Hemp. A few times, the latest time in the Farm Bill just signed into law.
Because of that term, I will hold my breath every morning and hope Bug opens his eyes.
Here's how you can send the message to Utah Lawmakers:
Like the FB Page - Hope 4 Children With Epilepsy
Go to the website: http://hope4childrenwithepilepsy.com/ and Click on How to Help.