It never ends

>> Thursday, December 12, 2013

Really, it never ends.

The confusion about why he did so well for two weeks and then can't walk a straight a line and is seizing AT LEAST 6 times a day now, it makes no sense.

He was constipated. It happens. A lot. And the treatment, no matter how innocuous it is, causes its own set of issues.

This time, we chose Mineral Oil. We haven't used it with great success in the past, but we hadn't been on the calcium and leucovorin either so, we tried. After the third worked. It also caused gelastic seizure activity and myoclonics like crazy. Typical of any treatment we use to help him have a bowel movement. Although, these symptoms were MUCH milder.

Then, he puked.

THIS is a sign he is slipping into a Cyclic Vomiting cycle. The current theory is that it is caused by the contractions of the intestines, thereby developing an 'intestinal migraine'. The treatment for that is Zofran and Ibuprofen. Which makes him take about a dozen little naps throughout the day...most not lasting more than 15 minutes each. And when he isn't sleeping...he is twitchy but happier.

Really, it never does end.


What a Seizure looks like (Graphic Content Included)



Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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