>> Wednesday, July 24, 2013
I'm taking a shower, minding my own business and the phone rings.
Let's go back to Arkansas first.
After we got settled into the EEG at Arkansas Children's Hospital, and we started the IVIg, life seemed pretty surreal.
Here we were, south of the Mason Dixon getting the treatment, that for over a year, I had been trying to secure for Bug. It didn't seem to be real. Not sure why, I always get what I want. Phhfft.
So we tried to give him Miralax. I told Glenn: You might not want to give him so much so fast, I am not sure he is done. Glenn looked at me and gave him another syringe. It came back to haunt him. Not that I am happy about that but...giggle.
We left it with: They will set up the IVIg with PCMC and call us about the test results (hint, hint), then we may arrange to come back in two months or so. Thanks all around and two days home.
Driving through Colorado all I kept thinking was: Cannabis. I wonder.
That was over two weeks ago. We have heard nothing since then.
I got out of the shower and answered the phone, it was Meg from Arkansas Children's Hospital. She was letting me know that his labs were abnormal. What was that you said? Abnormal? NOTHING has ever been abnormal before. Hooray!
SO, with these abnormal values, Dr. Frye likes to verify them with another test. OK. We can do that. More blood coming right up! Well, not immediately. They will fax the test to AMFOHO and then we will go give them another sample (please don't be urine, please don't be urine).
I asked about the IVIg while I had her and she said she would find out and get back to me. She thought they had faxed it, and I am sure they probably did, PCMC is just that way sometimes. Sad to say: we are used to it. But, get back to me, she did. The email asked me where we wanted the IVIg done. Oh hooray! And yet...poor Bug a boo.
Can't wait for the re-do and the results! A few more weeks! Eeek.