Purple Day!

>> Tuesday, March 26, 2013

We love purple day, even when the boy is sick (two years running) and seizing (7 years).

Purple Day reminds us that we are not alone in battling this condition, that we have MILLIONS of people around the world, of every race, every religion, every gender and age, that are affected by it. It reminds us that there are people that will not look at our beautiful boy and see a non verbal, seizing child but will see Bug: a happy, accepting, non verbal, seizing child that is like so many other children.

My son was not supposed to wake up every morning and have a seizure, he was not supposed to take multiple trips to the ER in a few weeks because he is cut and bleeding from hitting something. He was supposed to play soccer, and mix appropriate chemicals together with his Dad in someone's else's kitchen and he was supposed to ride a bike.

But, he does none of those things.

What he does is make people smile. He makes them feel loved by simply making eye contact and smiling. He makes them appreciate living.

And that is better than riding a bike.

Happy Purple Day everyone!


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What a Seizure looks like (Graphic Content Included)


Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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