>> Thursday, January 10, 2013

I was telling Tay that I may or may not make it to her production in school tomorrow. I explained that this appointment Bug has is a big one. It's with an Immunologist.

I asked if she remembers how Bug doesn't seize when he has a fever. Well, I explained, that's because his immune system is fighting the invader it is ignoring the landlord.

Once she understood the finer details (about immunosuppressants) she said:

And this could cure Bug?

I was taken aback, really. Because the answer is yes. Yes it could. He would have to follow the regime for a long time, maybe forever, but it could, REALLY cure him.

I have never thought about this FRa, and CFD and ASD and all of the other TLA's (Three letter acronyms - thank you Glenn - that's still one of my favorites) being actually CUREABLE. Just treatable. And, in a way, constant treatment isn't really a cure, is it? But if it helps him, if it allows him to communicate better, if it allows him to see the world from a standing position instead of on the ground, then, hell, that's a cure for me.


Post a Comment

What a Seizure looks like (Graphic Content Included)



Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

  © Blogger template Simple n' Sweet by 2009

Back to TOP