ER and a lost 24 hours

>> Monday, January 14, 2013

Yesterday was a bad seizure day. Not that he had a lot of seizures, considering the weather 5 is not unusual. BUT, he started it off hitting his nose JUST RIGHT and giving himself a bloody nose. Bummer. Didn't stop him though, still pretty active and by 3pm he had only had 1 seizure so I commented (out loud, like and idiot): Hey, by this time yesterday he had 4 seizures, so let's hope he's turned the corner.

Promptly ten minutes later; seizure number 2.

Followed throughout the evening with 3 more, it was the last one that threw us for a loop. He went Tonic, locked his hands over his head and fell over. He slid down the chair and gently landed on the floor. Didn't seem bad, except....

He loves to take his one big tooth and bite his lip off and on. He was in the middle of this biting when he seized. So, he locked up, his jaw clenched and he bit through his lip. From the outside in, again. This time, it was worse. I looked at the size of the cut and knew it would probably require a stitch or two. Off to the ER we went.

Bug and I were in and out in 90 minutes with 1 stitch. He was a champ. Daddy stayed home because it was getting late and the girls needed to be fed and put in bed.

By the time we got home, he was smiling and happy. Good sign. So we let him stay up to almost 11 (we got home at 9:35) and he went blissfully to bed. For 13 hours.

Today, he has been awake for MAYBE 4 hours all day. WTH? Mostly, I was concerned at first. But, maybe he is just healing and his body is shutting down to let that happen. He ate a big lunch so I am not concerned about that, and he drank two huge bottles of water, also not a concern. Just the sleeping.

I am so used to him sleeping normally, that this throws me into checking him every hour or less. His O2 is good: 97. His heart rate says: I am REALLY asleep at 77bpm. He is just sleeping well. With only two seizures that I know about.

After a long day of wondering I realized that 5 years ago, this would have meant ONE thing: seizure type change. So, maybe it does again. MAYBE we will see a change in seizures and MAYBE it could be good.

Or...he will wake up in the middle of the night (or now) with a fever. Hmmm...

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Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

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