>> Monday, June 25, 2012
The days have been getting better for Bug. He has more energy (uh oh), he is making more sounds (mostly the humming he used to do when he was a toddler) and his seizures are much shorter or non existent. When he does have one that is apparent, it's a doozy. Not happy about that but I'll take one big one every few days as opposed to lots of little ones.
Curiously, last night, he woke up crying about 3am. He was pretty upset and I began to get up to check on him. I saw Tay comforting him and he went back to sleep gently. I surmise he had a bad dream. A BAD DREAM. Cool. The child never slept longer than 2 hours without Melatonin, so he probably never, or very seldom, dreamed. We can safely say this, because his EEG, while sleeping, showed almost NO REM (Rapid Eye Movement) state. Safe to say: Not dreaming. He did have about a 10 second T/C around 7:00am, but that was the largest one. He had one instant myoclonic in the car about 1:30pm. So, he is making progress on that front as well.
We go to see Dr. Spencer in the AM. Gotta talk about treatment options, including IVIg and what not. I literally, can not wrap my head around the possible treatments that might help, it's not too much, it's just...what if it helps? I suppose, we will just have to wait and see.