So close

>> Wednesday, May 30, 2012

He had a good run. 36 hours with no seizure and then...a 40 second tonic complete with a good bonk on the noggin. Damn. Back to 0. Still, he is more expressive and happy. Easier to redirect and wanted to play with Taylor. He hasn't done that in over a year. What I wouldn't give to see him chase her around the kitchen island again. Sigh. Maybe some day. Maybe.

2 comments:

Jennifer May 30, 2012 at 8:39 PM  

I'm thinking of you and Bug. Glad you are still seeing the good...

Nett May 31, 2012 at 9:26 AM  

Thanks JJ, he really does seem to be doing quite well. It's so hard NOT to have visions of him talking. I shake with excitement at the thought...but I have to stay focused: It MAY NOT help as well. Still, any little thing, is a big thing in our eyes.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
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