August 4, 2011

>> Thursday, August 4, 2011

Today started out less than stellar. Bug had a hard time going to sleep but by 11:30, the battle was over and he slept somewhat soundly all night. When he awoke, he was pensive. Wanted to cuddle and a few minutes later, seizure number 1.

I gave him his medication and he followed number 1 up with numbers 2, 3, 4 and 5. Every 15 minutes. THIS is Bug clustering. To remind everyone (all 1 of you) clustering is one seizure after another, after another. Status is one LONG seizure, or seizures close enough together that the brain has little else it can do but mis-fire. So, I got the Diastat ready but he came out of it.

He came out of it when his meds kicked in. Oh hooray! He has NEVER been able to do that, we have ALWAYS had to administer Diastat. One more vote for the medicine tri-fecta.

Even though it started out crappy, he is his old self. Playing, climbing, smiling and scrounging. It's a far cry from how he was yesterday.

Yesterday just sucked. Plain and simple. He had at least 5 during the day, and that was with me giving him a maintenance dose of Dilantin at 4:00. I still believe he is burning through the medication too rapidly. We will address this with Shari on the 22nd. He will get a blood draw on the 21st and she will have the levels to look through. We have a lot to talk about. Hope she is up for it, because Daddy will be there as well. Tag team. Bwah ha ha.

Yesterday Mid Day
2ml Dilantin

Yesterday PM
5mg Phenobarbital
2ml Dilantin
200mg Lamictal
.5 Clonazepam

Today AM
2.5ml Dilantin
200mg Lamictal
.5 Clonazpepam
800mg Folic Acid (MTHFR helper)


mcarey71 August 4, 2011 at 12:58 PM  

I just don't know how you deal with this day after day...he's amazing and so are you!!! Hugs!

Nett August 5, 2011 at 1:05 PM  

Awww...well, we just do our best and try to keep a positive attitude. Gotta admit that it's difficult sometimes but after a good night's sleep, it all comes back into place. Thanks.

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