Backslide

>> Wednesday, June 8, 2011

Not sure these news meds are the key to anything great.

He is making messes again with his food, wandering around with it, instead of sitting in his chair. He is not talking much, hardly at all in fact. He is next to impossible to dress without pinning him to the floor and getting him in the car has pulled so many muscles in my body I can feel every single one of them screaming for Tiger Balm. AND we are wondering, again, if he can hear properly. The frustration factor is through the roof.

He is still having breakthrough seizures almost twice a day. We did have two days of no seizures but as of 30 minutes ago, the record was broken. Massive Tonic seizure. He took a long time to come out of it but he is good now. Playing loudly with his toy and watching TV intermittently. Good to see him smiling after that big of an event.

And top it off with Tay making an inappropriate comment about an infant having a seizure and my nerves are RAW. Very much so. Hopefully, we will turn a corner soon and I can get Tay into a summer program. She needs something social and I need a break.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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