November 9, 2010

>> Tuesday, November 9, 2010

I pulled out the infamous yellow form from Bug's backpack this morning. And it appears it wasn't an Absence seizure but an actual Tonic. It read that it was less than 30 seconds and he was rigid. Sounds like a Tonic Seizure to me.

And now I am worried that he is back in Status.

Other Mom's worry about their kids being sick, having a cough, a runny nose. These things are minor to me. Do they have the potential to be serious? Yes, will they usually be serious? No. The ick will run it's course and the child will be skipping and watching TV soon enough, maybe eating books again in a few days. But with Bug, he seizes during the day and I worry that he is in Status again. That his brain is misfiring A LOT, and that can be severely damaging.

What I need is an at home EEG monitor. And medication. For him AND me.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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