What has come to pass.

>> Thursday, September 30, 2010

The last little while has seen an increase in sleeping seizures but no daytime events. Still, it's very disheartening.

He is, however, having the time of his young life. He is gabbering away at us morning and night. He is saying MaMa! And only to me! Very thrilling. So we know that even though he is having multiple (sometimes) events at night they are not really effecting him like they used to. Or so we hope.

We had his IEP yesterday and increased his Speech Therapy.

He had his post op follow up with Dr, Munz and Munz got to hear him say BaBa. He said it was very encouraging that he was trying to talk already and that we should continue to get him increased therapy to help him along. He said he was very pleased with his development.

I almost fell off the chair! He didn't say: In spite of his 'bad brain' (thank you PCMC for THAT little nugget of a saying, gonna store that one in the forefront and throw it out every time Bug says a new word).

It's been a bad summer. Very bad and I just want it to go away. Hopefully, he will be talking more and more and at Christmas he might even enjoy opening presents again. Fingers crossed, but no breath held.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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