>> Thursday, September 30, 2010
The last little while has seen an increase in sleeping seizures but no daytime events. Still, it's very disheartening.
He is, however, having the time of his young life. He is gabbering away at us morning and night. He is saying MaMa! And only to me! Very thrilling. So we know that even though he is having multiple (sometimes) events at night they are not really effecting him like they used to. Or so we hope.
We had his IEP yesterday and increased his Speech Therapy.
He had his post op follow up with Dr, Munz and Munz got to hear him say BaBa. He said it was very encouraging that he was trying to talk already and that we should continue to get him increased therapy to help him along. He said he was very pleased with his development.
I almost fell off the chair! He didn't say: In spite of his 'bad brain' (thank you PCMC for THAT little nugget of a saying, gonna store that one in the forefront and throw it out every time Bug says a new word).
It's been a bad summer. Very bad and I just want it to go away. Hopefully, he will be talking more and more and at Christmas he might even enjoy opening presents again. Fingers crossed, but no breath held.