>> Tuesday, July 20, 2010
I guess the med change is not helping. Damn. It's so demoralizing. He has a good couple of days and we see Bug coming back to us and then he seizes and disappears. I suppose that is the completely inappropriate to say, he is, after all, still in front of me, still smiling, still enjoying himself. It's just difficult to see him day after day coming out of these things. He reaches for me, he holds my head and touches my hair and grips so tightly I think I will explode with sadness.
He has an ENT appointment in 2 days. Only means he will, most likely, have tubes put in his ears. Nothing more. I have given up that little hope that anything will help him talk, that anyone has any answers. I have resolved myself to just trying to help when we can, and accepting more than fighting. Is this a permanent position? Most likely not, but it is one of those days.