All-consuming

>> Wednesday, July 21, 2010

2 events.

Although one is actually up in the air. It could have been a seizure or he could have startled himself awake. Either way he went right back to sleep. In the morning, he woke up energetic. We heard the door open and close several times, he played in the bathtub and jumped on our bed. At the bed-jumping point we got up and sat with him. We talked about his appointment tomorrow and Glenn got up to get ready for work. That's when Bug fell over. Complete drop. Absolutely limp. Took him a few minutes to come out of it and he was combative. I gave him his medications, fed him breakfast and Daddy took him to school.

It was then I took a breath and decided to play around on Facebook. I began to notice all my friends and groups have changed...they have all become Epilepsy focused. Not a bad thing, they are good people but WOW. Epilepsy does take over everyone's lives once someone they love have it. And it should, it needs to in order to be confident that your loved one will not get hurt. Diligence is key.

Also, communication is paramount. An organization of people living with Epilepsy can educate better and more effectively than one trip to a Neurologist. I like the new direction my online friends have gone, the support is so very important. Because Epilepsy sucks and it's extremely depressing when the new medications don't work or the old ones become less effective. It's impossible to go it alone and so...I'm not.

Thanks Epilepsy Friends! We love you!

3 comments:

falvesjr July 21, 2010 at 3:30 PM  

Just don't forget us little folk... =)

Nett July 28, 2010 at 9:08 PM  

Never! You are one of the main reasons I am still sane enough to laugh at the insanity. ;)

falvesjr July 29, 2010 at 1:47 PM  

I'm happy to hear that! Just know that as long as I'm around, you will never be alone in this and you will never, ever, be invisible. =)

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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