May 20, 2010

>> Thursday, May 20, 2010

2 events and possible two small weirdnesses.

The first one last night was nasty. It was almost a full minute and he had a tough time recovering. Broke my heart to see him like that again. The meds...just aren't strong enough and either we up them and risk his organs or we actually start looking at VNS.

We had to wake him up to get him to school this morning. Maybe, NOW, for the first time in his life he will let us set a routine. Ya, I know, some parents are all about getting the kid to bed at a specific time, and getting a nap at a specific time and well, I have seen the tailspin that occurs when the child, and the parent, don't get the child to sleep at their appointed time. I didn't want a child that inflexible and he always just slept when he was tired, except for those few bad days and when he turned 3. And I wonder if people know how upsetting and rude it is to say: He just need more consistency. Yep, I am a bad Mother because I let my child self-soothe. And ya, Bug's epilepsy is just because I didn't have more of a routine. Some people, really do blame the Mother for the child having problems. You know, sometimes, it just IS what it IS and NOTHING could change it. But we can work to adapt to it.

So now, we will see if we can get him more into a routine.

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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