April 30, 2010

>> Friday, April 30, 2010

MAYBE an event.

Sometimes it's hard to tell when he is sleeping and they are so short. We were all in the bed...Bug, Tay and me...in that order. He had fallen asleep while we were watching a little TV and I heard him cough. I looked over Tay and saw an outstretched arm. Uh Oh. So I rolled him over. He rolled easily and his eyes were open, he turned to look at me and he did seem a tad out of it but he had been asleep.

He didn't have anymore issues after that He would stretch ever few hours but not a seizure. Just stretching and groaning. Eyes closed. It was cute but annoying all the same. Woke me up a dozen times just because he needed to stretch.

Not a whole lot of talking today. Bummer, because it is darling!

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April 28, 2010

>> Wednesday, April 28, 2010

No events.

He is feeling MUCH better. Very energetic and happy.

Last night, I stayed up late to decorate for Tay's birthday, when I got to bed Glenn woke up and told me that Bug has been asking about me. Glenn said that Bug looked at him and said:

Where Mama now?

I was intrigued and an half hour later Bug woke up and saw me...he reached out and said: Mama!

Then: O Dada?

I told him Glenn was in the bathroom and with that, he curled up in my arms and went back to sleep.

Today, he has been chirping but not talking. Curious that he speaks when he is sleepy but not when he is awake and active.

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Naptime...

>> Tuesday, April 27, 2010

and one seizure. So far. I gave him his meds and we will wait and see how he responds. It was full T/C about 20 seconds.

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Sigh

No events the last two nights BUT...

He DID just have an Absence Seizure. No doubt about it this time. Very classic.

He is pretty darn sick too, fever is gone this morning but I am anxious to see if it comes back tonight. IF it does I am thinking: Ear Infection. Poor kid, can't just be a kid and run and have a blast. :(

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April 25, 2010

>> Sunday, April 25, 2010

No events.

BUT he is sick and we may have missed one this morning. Poor kiddo, has what Glenn had last week. Fever and everything. Good thing he doesn't have febrile events. Still makes me sad when he is sick...he looks so tortured. :(

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April 24, 2010

>> Saturday, April 24, 2010

4 events AFTER the ones last night. So yesterday he had a total of 8. We hadn't given him his morning meds.

Still, his events are happening more frequently after a 2 weeks of nothing..and with the increase in Absence I think I am gonna drive them crazy to get another EEG. That is, of course if it has been a year since the last one and I THINK we are coming up on that.

He is happy and smiley, of course, not giddy, not Gelastic - y. Not sure what to do. Lack of sleep and headache maybe muddling things.

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April 23, 2010 - Update

>> Friday, April 23, 2010

2 events.

Since he fell asleep. So 4 total today. One in the AM, the one at school and now this...let's hope all his meds kick in, even though it has been over 4 hours since he got them.

The first one was at 10:40 - 20 second T/C
Second was 11:45 - 10 second Tonic

Please, let him sleep soundly. My beautiful boy.

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School event

Another school event. At 12:45.

They think he was in seizure for a minute and a half and that it started in the left side and then progressed to his entire body.

I want to cry.

I want to scream.

But he is fine. He is smiling and EXTREMELY hungry when I brought him home. He ate two Chimichanga's with chips and begged for more. He drank a bit but not as much as was reported from school.

Sarah mentioned that she thought he spoke the other day. She said what I have heard others say, and what Glenn and I have said before:

I KNOW he said something, I just couldn't tell what. But it WAS clear as day.

This is the bright spot in the day. May 17th can't come soon enough.

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April 23, 2010

2 events. 10 seconds each..one at 11:45 last night and one at 7:30am this morning.

He missed his morning medication yesterday because I was at the University of Utah taking an Insider Tour. IT WAS GREAT...and it was sobering.

It appears that the glossy-eyed looks I get from Doctors are mostly after I tell them Generalized Seizures. Because with Generalized Seizures the electrical activity happens all at once, from all over the brain. If it was a Focal Seizure then he would be a surgery candidate, but because his little brain misfires either all at once, or from a specific location yet to be determined, they shrug and shut down. No kidding. Not all do that, but the ones that will see Bug do.

I don't get it. I just don't. He has had over 1500 seizures in 4 years. 1500. What more does it take?

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April 22, 2010

No events.

Fairly talkative and really fun. Or so I hear. I wasn't home most of the day, and he was at school so..

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April 21, 2010

>> Wednesday, April 21, 2010

No events.

We have modified his medication. He gets:

AM:
50mg Zonegran
100mg Lamictal

PM:
125mg Zonegran
175mg Lamictal
8ml Keppra

We are going to up the Zonegran, since the manufacturer states he can go as high as 400mg in a day and phase out the Keppra. The Keppra made him very moody and angry when he first started. We upped his Lamictal a little and then, when he adjusted to it, he did fine. But of all the meds, the Keppra seems to be less effective.

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April 20, 2010

>> Tuesday, April 20, 2010

One event.

This morning he woke up at 7am after a very peaceful sleep, played for a few minutes and then went back to bed. At 9am he had a 5 second Tonic and was up for the day. Probably.

Very hungry this morning.


Pretty sure I witnessed an Absence Seizure a few hours ago. Glenn and I have been wondering about some of his actions for a few weeks and this one...was just like his old ones only shorter in duration with NO recovery time.

He was looking down, the rest of him frozen in place, and he was not responding to my touch. It lasted 10 seconds and then he was back with a vengeance. Gonna try to get them on video. Wish me luck. I am going to need it.

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Home for the day

>> Monday, April 19, 2010

WARNING: IF YOU ARE A LIGHTWEIGHT ABOUT VOMIT - GOOD LUCK!

Just shy of 1PM I was getting ready to head home from Salt Lake when I got a text from his teacher. It said:

Glenn has thrown up, can you come get him?

I texted back that I was in Salt Lake but I was on my way but I would try to get Glenn there first. So I called Glenn and asked if he could get him.

Again, as I have said multiple times before, it seems like a simple statement BUT when Bug pukes it's a two person job. One person to calm him down and watch him in case he pukes again and/or he seizes, and one person to clean it up before he plays in it. Yes, he has eaten his own vomit on my watch and that is how I know it's a two person job.

To be specific: I had cleaned him up and was proceeding to clean up the couch when I looked down and he was hand to mouth in it. You're so welcome for that visual - and suddenly he is NOT as cute as he used to be is he?

So we are home, Glenn and I, Glenn on his phone call and me, being mauled by the boy and when not mauled, watching him burp and roll on the ground. It's charming.

If he can't keep his meds down - he will most likely, seize all night. I hope we are not in for a long night.

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Can't win for losing.

>> Sunday, April 18, 2010

2 events and one linen change.

A few days ago I posted about his gagging...well yesterday he had hiccups off an on all day. Usually that signals a growth spurt and I end up buying him new shoes. But it can also mean he is going to go on a pukefest.

At 11:30 he had a 10 second T/C. At 3:00am he woke up and tossed and turned for about 15 minutes before I heard: Blech. God bless the kid, he puked on his sleeping father. Missed him by a millimeter actually but still...made me feel not QUITE so dirty. We bathed him quickly and he went back to sleep immediately. We took another 30 minutes to clean the bed and air out the room.

At 9:30am he had another 10 second T/C.

Today he hardly ate. Could be he is a little sick to his stomach...could be it's his meds. Could be a million things.

But he just had another seizure. 10 second T/C. - 9:30pm Smiled and kissed me and its trying to go back to sleep while watching me type. Really cute.

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April 17, 2010

>> Saturday, April 17, 2010

4 Events.

All were Tonic/Clonic...all were less than 10 seconds and recovery was immediate - he went right back to sleep.

I am very depressed this morning.

He is playing and smiling and being really cute, expect for playing with the door stopper - that is loud and annoying, and I just have no clue what to do. I think my warrior status will be revoked if I don't snap out of it.

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I didn't want to but..

>> Friday, April 16, 2010

he had to go to school. I felt bad taking him there when he had so little energy. All I wanted to do was keep him with me and cuddle with him all day. But he has to get all the information he can after these events. We need him to not forget what he already knows.

When he woke up this morning, he wanted to be held, and he wanted ME to hold him. This is a far cry from the GIMME DADDY of a few years ago. It's probably the extra cushions I have. :)

He didn't eat his pizza at school yesterday, and they tell me he is avoiding milk altogether now. He used to have the chocolate milk but not now. Something has changed.

So that got Glenn and I talking about calcium channels, and sodium blockers and blah blah. More research to come.

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April 16, 2010

5 events. 5.

At 10:05 he had his first, it was about 30 seconds and Tonic. It took him almost a minute to recover.

At 10:47 he had the second, a 10 second Tonic.

He slept well until 4:45am when he had the third. It was a 5 second Tonic.

At 6:40 he had a 5 second Tonic and at 7:54 he had his last 5 second Tonic of the night/morning.

I will find out what he had for lunch at school yesterday. We are both tired and I think we both have headaches. I know I do.

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April 15, 2010

>> Thursday, April 15, 2010

One very small event.

At about 11:30pm he locked up and his eyes hot open for about 5 seconds. I grabbed his hand and it wasn't but 3 seconds before it relaxed and he started drifting back to sleep. He slept pretty well.

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Hi...don't mind me...I'm just his Mother

>> Wednesday, April 14, 2010

Why is it that when I tell Doctors about his weird habits they alway find some bullshit-i-read-it-when-i-was-in-med-school answer? Why do they dismiss the daily choking on phlegm?

It's not allergies...Super Doctor Allergy Man tested him and his scratch tests that where limited to a handful of intense allergens were negative (so why do I have to have 30 scratches and he only has 10 that have 3 allergens each?). Certainly it can't be a PHYSICAL problem. Surely it can't be he has a funky gag reflex, or a touch of the GERD? Certainly not.

I have been sitting by him almost since he got home at 4:15 and he has been gagging off and on. About once an hour I think he is going to puke. He has done this off and on...oh...forever. It's one of the things we have on his list...I see a new page on this blog being built. And EVERY Doctor has blown me off. I don't want to take him to a Gastro Guy, dear God I will be made to feel even more like a freak than I already do.

But, screw that, I am insane then, because I want to know what it is he can't tell me. I want to know why he looks at me as if he is going to say something and then just smiles. Someone, somewhere will put together the pieces.

And I need to get a video of his twitches. These are pretty new. K..going to go cry for a spell. A long spell. Sad part is, it won't make me feel better.

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April 14, 2010

No events. I think.

He grunted and did a little jerking thing while he was sleeping. I grabbed his hand and he responded so if it was an event, it was REALLY short. I won't mark it, since I can not be positive.

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April 13, 2010

>> Tuesday, April 13, 2010

No events.

May be getting sick again, both the boy and myself. I hope not but OY! the headache. And he didn't want breakfast. :( Hopefully, he will eat a big lunch and be a happy boy all day.

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A day in the life

I once wrote about the ugliness that is administering rectal Diastat. How much fun was that? Today, I think I will elaborate about actually living under the spectre of Epilepsy.

I say under because in a lot of ways, and in a lot of places, Epilepsy is looked down on. People with Epilepsy are thought of as second class citizens and treated as outcasts. Many people harbor the misguided idea that because a person has Epilepsy then they MUST be deficient in capacity or odd in some way. While Bug has other problems, his Epilepsy does not make him lacking in intelligence. Even his OWN Neuro thought his lack of speech was related to his seizures. This is, most likely, NOT the case. He may have a brain stem issue that may be causing the speech problem and the seizures, but in no way can the Epilepsy be considered the CAUSE only a symptom.

When a child is diagnosed as having Epilepsy, it is advised that quite a few daily tasks be modified to prevent the person from injury. There is a list of SHOULD NOT's that I think you might find interesting:

A child with Epilepsy SHOULD NOT

  • Go swimming alone. ALWAYS make sure that someone who is aware of your Epilepsy goes swimming with you. ALWAYS wear a life jacket.

  • Ride a bike - With a helmet you ask? Nope, it is SUGGESTED that children do not ride a bike at all. Imagine riding your bike on the side of the road and then finding yourself in the middle of the road because of a seizure? Again, ALWAYS have someone with you.

  • Bathe without someone nearby - Yep, the bathtub and shower are dangerous places to have a seizure. Been there, seen that first hand.

  • Jump on a bed or trampoline - The hell you say? Yep, bad idea even with someone around. The fall from a trampoline or bed, above ground or not, can break legs, arms and necks if the person is unable to control their fall in any way.

  • Play on playground equipment - this should be limited to shorter equipment and a person must ALWAYS be present.


That is a small list. I won't even mention Skateboarding, skiing or any other sport where momentum is a factor to fun. Helmets should always be worn when any physical activity is being done and, get this: The rule is that if your feet leave the ground, you should avoid doing it.

Sucks all the fun out of childhood doesn't it? If you let it, it does. But if you are parent of a child with Epilepsy, you make EVERY day count.

It can take years of having seizures to begin to recognize the signals of an impending event. Even then, there are not always indicators that a seizure is about to occur. This is why these precautions are so important.

Do WE follow all of them? Yep. We do. Bug is never alone for very long. We do let him jump on a trampoline, small one or one with a net around it but even then, I am a nervous wreck. I do NOT tell the people, with whom he is playing, to be careful or mindful of him simply because of the possibility of a seizure. I mention to them that he can not communicate and we are not sure if he can understand at all, that's it. I don't want them to be frightened of seeing a seizure, because I have seen Mothers take their children home after I explain about his Epilepsy. Am I imagining it? I wish.

Everyday, in every way, his play and his actions are evaluated for safety. Can you now imagine watching your child even climbing the stairs and having to be concerned? Most people can't. Most people shouldn't.

If you have witnessed a seizure, you know how concerning it is, if you haven't...it can not be described. I could try, but it is one of those things you have to experience.

When Bug was having seizures more during the day, any trip out could turn into a learning experience for the people that happened to be there.

A few years ago, we took the kids to the IHOP. They love going there. Bug was playing with the people next to us. They were laughing and smiling and trying to get him to talk. I explained that he didn't and they commented on his beauty. They smiled back and forth, he played peek a boo and we all ate. At the end of the meal, Bug locked up and went into full Tonic Clonic Seizure. They didn't see it, they just saw Glenn taking him out to the car. I gathered Tay and paid the bill. The nice people were left to wonder why we left so suddenly. I saw them watching us leave with puzzled looks on their faces. I waved and they waved back. Bug was in seizure for 3 minutes. Our day was done. We took him home and he slept for 4 hours. It is what it is and people with Epilepsy live everyday like this.

The key is to make people more comfortable with Epilepsy so that daily activities aren't a guessing game. So we aren't afraid of how people will respond if he has an event. Bug is lucky, in a sense, he is so pretty that people are comfortable around him. They are concerned for his well-being because he is easy to fall in love with on first sight. I think they are more willing to accept his Epilepsy and his Autism because of it. People really are more interested in perception than substance. They perceive his beauty as no threat, his epilepsy is therefore, easier to accept. In more than few people, he has helped them see what Epilepsy is NOT and he has helped them embrace it as a medical diagnosis and not something to be feared. And he has done this without words. Simply by being himself. And himself is lovely.

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A painful reminder

>> Monday, April 12, 2010

I took Bug to school this morning after a week of having him home with me. I noticed the flag was flying half mast. I wondered why and thought I would look when I got home.

Bug wasn't so sure how he felt about going back to school. I had to tug a little but once he got to the classroom door he was happy to go in. I left him quickly, trying not to disturb the reading that was going on and on our way out, I saw a poster on the glass near the office. Kim, the principle, was there along with another woman. I was reading about Rett Syndrome and didn't notice the pictures next to it.

I was reading about how Rett is almost ALWAYS seen in girls, and that it is the ONLY KNOWN cause of Autism in females. It didn't occur to me that it was posted for any other reason except we are in a Special Needs School and it's just one of the things that is always around. But, there WAS a different reason.

Kim saw me and turned, I said: "Sorry to look over your shoulder, don't mind me".

She said: "Oh, that's OK. Yep, we lost one of our students this weekend".

THUD.

That was my heart hitting the floor.

THUD.

Followed by my stomach.

We exchanged a few self serving: She is in a better place. Etc. All the while, I was holding back my need to weep.

Right before I left, and get ready for this because it will make any woman I know cry, Kim said:

"Yep, her name means caterpillar in French. And now she is a butterfly."

I expressed my condolences, I think, and took Tay to the car. Got in the car, turned the ignition and cried all the way home.

I know it happens and there is little we can do about it. Children are born, sometimes, fated to die young. It sucks. It is how it is. I imagine that as much as we can prepare for it, the pain itself, is unimaginable. I KNOW that Bug has a slightly higher chance than other kids to just suddenly have a seizure and die. I know this, and I accept it as much as I can, but I also fight it. I make sure he has his medication but still...nothing can stop it really.

This little butterfly, I ache for her parents, for her mother especially. I can't think about what happened, I can't do it. It just hurts too much to think about. I have seen, what I thought was death, in Bug's eyes too many times and the thought that one day...well I can't think about it can I? I can not paralyze myself like that. I am so sorry she is gone from their lives. Nothing more to say really.

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April 12, 2010

One event.

He fell asleep on me while we were on the couch, he slept well for an hour before I moved him. I was reluctant to do that but I was having difficulty breathing, he is a heavy kid, and I had no choice. Moved him and 15 minutes later...he had a seizure. It wasn't long, Tonic less than 10 seconds. Took him another few seconds to fully come out of it and then he went back to sleep for the rest of the night.

Technically, because it happened before midnight he had two yesterday. Hopefully he can have another 2 weeks seizure free, starting tonight. Fingers crossed.

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April 11, 2010

>> Sunday, April 11, 2010

One event. :(

It was less than 10 seconds but still..bummer.

I wasn't sure if he had one on Saturday. He was so tired while we were up at Nana and Papa's that we moved him from Downstairs to Mom and Dad's bed. I went in to check on him and he was sitting up. He didn't look like he was been having trouble but because I wasn't sure...

He was cute the rest of the day, very playful and energetic. We took him to the Gem Show at the Weber County Fairgrounds. I carried him quite a bit and he would just grin at me and play with my hair. He didn't care much for the displays and samples though. Except the jewelry. The necklaces spin nicely after all. :)

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April 9, 2010

>> Friday, April 9, 2010

No events.

Dare I hope? He is very hungry today. I fed him, he left the corn and chicken and now, an hour later is digging in the fridge and looking for food on the floor. There ISN'T any food on the floor.

That I know of.

Better go find him something to munch.

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The Nighttime

>> Thursday, April 8, 2010

It's almost 11:30. Bug had to be run back to bed 4 times before he stayed. He is asleep next to me on the bed we have for him. I can hear him breathing. I will not go to sleep immediately. I will stay awake, even though I am very tired, for another half hour. I will stay awake and listen, saying a silent prayer, hoping my typing is soft enough to not stir him. I will look at him every so often, sleeping peacefully, with that gaze that every new Mother has. That gaze that speaks: he is a miracle, he is MY miracle, MY heart, MY love, and my responsibility. And during this time, before I drift off, I will question if I do enough for him. Do I make him happy? Do I give him the best of me to bring out the best in him? I will not question why his journey is so different than other's, I will not cry over the child I lost, I will plan for the future. I plan, like every new Mother does, I plan for the man he will become. Sure, I may have to rattle a few more cages, and dedicate more of myself than most Mother's have to, but he is mine and I love him.

I am a new Mother, I am seeing things in my boy that I have not seen in years. I whisper his name and he turns to me and grins. I can surprise him again and make him jump. He gets pissed by this though, so we try not to do it too often. He looks at me and sees me again. I am a new Mother.

And he sleeps. I find myself anxious, and holding my breath off and on. Waiting for the other shoe to drop, waiting for a little scream. I haven't heard it in almost 14 days...I want this to be a new 2 year record, I want this to be the start of many peaceful, normal nights. But I think, I want too much.

And he stirs. Time for bed.

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April 8, 2010

No events.

When is school back in session? I may have to eat the children.

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I just realized...

>> Wednesday, April 7, 2010

The head of Primary Children's Center (PCMC) never called back. Not only that but NO ONE from PCMC has called back. Been almost two weeks. Time to climb the ladder or time to cut them loose? This...is getting...stupid.

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April 7, 2010

No events.

But he had a bit of a fitful night. He would toss and turn and then sit up every few hours. I would lay him back down and he would immediately go back to sleep.

The fall yesterday, left him with a scratch on his neck. I will look into bumper guards more vehemently. I have been searching for months whenever I am in a store that carries baby-proof stuff but now..online I go.

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Well, that was curious.

>> Tuesday, April 6, 2010

I knew it. The Fates heard me. And they hate me.

I was getting Bug a drink from the fridge and he sort of, well, just, fell over. He grabbed at the counter and missed, which is unlike him, and ended up scraping his neck on the STUPID unpolished edges of the counter top but I was able to catch him. I held him, he was coherent and pissed. He smacked his legs and then grabbed his head and covered his eyes.

I thought: Stroke.

THIS is what you live with, everyday, when your child can't tell you what happened and when your child has Epilepsy. Every little thing, becomes a big thing. A guessing game, and sometimes an ER trip.

Not this time. I let him come around on his own, and he smiled. He had been grabbing his head this morning and so Megan and I BOTH decided he had a headache. I gave him Ibuprofen. So when he fell...it wasn't a complete shock but it was weird.

I checked his eyes, equal and reactive. No sign of Anisocoria, which has been VERY apparent after every seizure for the last month. So I am reluctant to say it was a seizure. I grabbed both his hands and stood him up. He seemed to have bilateral equal strength. I walked him to the couch...he walked well and we sat down with his drink. He sat on my lap and I grabbed the Doodle Pro. He spun the stylus with both hands equally well. He gave up on sitting on me after about 30 minutes and was back to messing things up.

So...what the hell was that?

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April 6, 2010

No events.

I would say I was excited and shocked but then The Fates would hear me and he would cluster. No kidding.

He is eating well and playing well, holding hands with his sister and just being really cute. I wonder if it's his medication. Those few years when he was such a handful...I can't help but think his meds would have helped. I would probably have a lot more hair.

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April 5, 2010

>> Monday, April 5, 2010

No events.

And no school all this week. Spring break. Hoorah.

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April 4, 2010

>> Sunday, April 4, 2010

No events the last two nights.

He is sleeping so well, it's curious. A far cry from the child that wouldn't go to sleep or would wake up every few hours. It's amazing and I hope it is a sign of good things.

Glenn noticed that he is more interactive and seems to follow directions better. He is picking up things he spilled but still throwing his toys on the floor randomly. Sigh. One thing at a time.

He seemed to enjoy Easter more than he has int he last few years. Also good to see. He has plenty of energy and was very pleased to be with Nana and Papa. All in all it was a fantastic day!

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April 2, 2010

>> Friday, April 2, 2010

No events.

When Glenn woke up this morning he grabbed Tay's hand. He held her hand and inched toward her. He put his arm around her and smiled and leaned his head into hers. She was a little weirded out, no idea why but she pulled away. He grabbed her again, and held her again and she submitted for a few minutes. But how long was that going to last? I mean seriously, she is 4. She was out of there in 4 minutes flat. He was a little sad.

I cuddled with him and he snapped out of it. Smiling. Always smiling. OK, not always but a lot.

He didn't really eat, I gave him yogurt to help with antibiotic he has been on and some toast. But that was it. He was done. Two glasses of water and a bunch of spinning before he got to school.

Everyone tells me that he drinks A LOT of water and he has an aversion to sugar. I wonder if those are symptoms? They sound like it to me. Anyone care to speculate?

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They have the COOLEST things

>> Thursday, April 1, 2010

No events.

Bug's school, Dan Peterson Elementary, has THE coolest events for what COULD be the most mundane things.

Today, for example, we walk in and they are having a Tooth Fair. The UVU dental students are there, with educational booths, fun booths and crafts and are teaching the students about proper dental hygiene. Mostly, it was just fun though.

Bug had to go to OT and watching him walk out of the gym, not at all interested in the fun going on around him, made me cry a little. I tried not to, Tay was getting a butterfly painted on her face, and I didn't want anyone to ask if I was OK..yada yada. I did stop before we went to the Fish Pond, thankfully so. We had a blast. They took A LOT of pictures so we will have to wait and see if they send them home with Bug. I want him to have a good time, like Tay and I did. I want him to make a crown and think it is the coolest thing ever. These things I want, are not the things HE wants, so I really shouldn't be concerned with my opinion being his. I can't help but think he is missing out on childhood. But is he really?

Bug enjoys himself, he has a good time, he likes to be outside, he likes to ride the rides at Lagoon. He loves the water, and the beach is really fun with him. He runs into the wave and then as it is coming back in, he runs away. And then falls down laughing. The cutest thing right?

He is doing some deceptive things lately too. Showing some very real opinions. Last night he chased Tay around trying to get the toy she had. He REALLY wanted it. He was getting a little upset so I made Tay give it back. Pissed her off, made him happy and I wondered if it was fair. Then I thought: Eh, Tay can handle it, she needs to learn. BUT I also made HIM let HER play with the Doodle Pro.

It all evens out in the wash.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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