>> Tuesday, December 1, 2009
Bug has had two glorious nights. Not only did he NOT have any events, he slept REALLY well. Which means that, in turn, Glenn and I did too.
We took him to get his blood work for the genetic karyotype last week. He was a trooper, but then again, he always is. Hopefully we will hear back this week. If there is nothing apparent, I will ask to be referred to the NIH program that Glenn texted me about. I just can't believe that with his specific symptoms, there isn't something we can find if we look in the right places.
He has been so charming and fun the last few days too. Happy and playful, seemingly very attentive as well. As I drove him to school today, he was watching the route I was taking. He was watching the buses parked along the street, following them with his eyes and turning his head. This may seem like a small event but it's actually very big. It shows that he is interested in things outside of himself and what he is doing, that he is acknowledging things around him, coming more into the world. Do we evaluate too much? Do we project onto him? Maybe a little, but when he can't tell us what he is thinking, we have to guess and we have to be detail oriented. To look at what is different and what is consistent. When the child can say to you: I have a headache, you give him or her medication. When Bug, hides under a blanket in the middle of the day, or covers his eyes, what would any parent think? We think: He has a headache. And we give him medication.
His entire life is a guessing game. And he smiles about it.