Defining surpise

>> Saturday, September 19, 2009

Got a call back yesterday from Penny. I am now OFFICIALLY in love with her and she will be on the Christmas list FOREVER. She said that the Doctor thinks his metabolism is fine after looking at this tests, BUT he also believes that he should not be waiting another 6 months to be seen by a geneticist. SO, she called one and they are getting him in..get this..on TUESDAY the 22nd of September. I am excited beyond belief.

He had 3 seizures this morning after 6:00am...so either we got more of the XR in him at night or..well..no idea what just had the 3.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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