Defining Frustration

>> Friday, September 18, 2009

Dear heaven above there HAS to be a better way. And NO amount of Health Care Reform will help it.

Bug IS on the waiting list for Genetic testing at Primary Children's. Big freaking whoopee. He has been on it for almost 6 months, and still has several months BEFORE he will get an appointment. One year. An entire year is the waiting time. 12 months. 365 days. At 10 a night....3,650 seizures? Even at ONE a night...365? What does it take?

I called all sorts of Doctor's Offices at the U today. I called Genetics, The Metabolic Clinic, Dr. Van Orman, Endocrinology, and The Hearing Assessment Clinic. I left a message with ALL of them. Penny at the Metabolic Clinic was the ONLY one that actually SAID she would get back to me with our possibilities within 24 hours. I like Penny. I like her a lot. Even IF we are spinning our wheels before the Genetic testing, at least we will know and we can add them to the list when it's done.

ENT called back! Hearing Assessment folks. If I get a referral, Bug can get in the FIRST week of October! Holy Hoo Rah! Now, I just gotta find a referral.

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