>> Monday, August 3, 2009

I wonder when I will hit that point where I am numb to his feces eating, wiping, playing and just see the child that does not have the ability to control it. When will I look at that mess and just sigh and put him in the shower? Because I still cry. I still look at him and cringe with disgust when I see that all over his face. I picture him at 15 doing the same thing, and then, I can't do anything about it if he won't let me clean him. Right now, I have to FORCE him into the shower. He will sit in it for hours, gleefully dipping his hand in when the paint material wears off. Chirping his delight that he is happy and playing with something that he made. When will I stop crying?

I took it upon myself to up his dosage of Keppra. It's not insane since he is still on a really low dose. He got 5ml in the morning and 5ml at night. He only had one at 7am so I think he is still burning through it too quickly. I will call Shari in a few days once we get a consistent dosage build up and see where he is. Sigh. Again. Sigh.


Post a Comment

What a Seizure looks like (Graphic Content Included)



Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

  © Blogger template Simple n' Sweet by 2009

Back to TOP