July 28, 2009

>> Tuesday, July 28, 2009

Oy.

He didn't want to fall asleep until someone was laying beside him. So I did. And ten minues later at 10:45 he had a seizure. A grand mal, long. He fell back asleep and fifteen minutes later he had another. I debated giving his medication time to work, but really, I held out little hope it would and I gave him Diastat. He slept.

At 7:15 he had another. Today I am calling his Doctor's again and giving up the pleading and the begging for something to change.

UPDATE:
Talked to Shari, bless her for calling me back so quickly, and we are upping his dosage to 4ml 2x a day. I think this will go higher but hopefully it will give him some relief for a few days. Fingers crossed.

For the record, Keppra dosage is done by Kilogram. He can have 60ml per Kilo if needed. Hoping it's not needed.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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