Morning Update - June 20, 2009

>> Saturday, June 20, 2009

Bug is not awake at the moment which is a bad thing. He has been clustering since a little before sun up and I lost count at 6. They are minor events, as far as his seizures go, so we did not administer Diastat. The severity plus the fact that he would be awake and out of the seizures at any moment delayed that. He was not completely rigid during all of them and he was somewaht verbal, most were under 10 seconds but two or three were longer than 20. It is 8:13 and if he is not awake in a half hour...

We made the wrong call last night. Even though he did not have anymore until around 5am, we still should have seen this probability and given him the Diastat.

It's difficult to know for sure, of course, and it wears off pretty quickly for him now. Diastat used to give him relief for 10 hours but now if he sleeps for 6 after receiving it we are lucky. I will not hesitate again.

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What a Seizure looks like (Graphic Content Included)

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Seizure Tracker.com

Seizure Tracker.com
Free online tools to provide people living with epilepsy and their doctors with a better understanding of the relationship between seizure activity and anti-epileptic medication dosages. Reports generated on SeizureTracker.com include detail graphing capabilities and are easily sharable with caregivers.

Diamond Potential Awareness Award

Diamond Potential Awareness Award
Thank you Holly at Diamond Potential for this award. Awareness leads to understanding and acceptance. And let's face it, we all need to feel accepted for who we are. The battle has just begun!

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