Morning Update - June 30, 2009

>> Tuesday, June 30, 2009


What a night for the poor kid. I think the Melatonin kicks off some of the clusters. He hasn't had a nightful of seizures for weeks until last night, until the 5mg of Melatonin.

He was VERY cuddly and somewhat annoyingly agressive about it all day. It was cute, mostly. He was pretty calm, played with his sister and by himself and gave no indication of the night to come.

I kept to the regime and gave him 175mg before bedtime and he was having a hard time shutting down. I will put him in a dark room and lay down with him when he is like this, Glenn decided to help and gave him 5mg of Melatonin.

Melatonin can cause vivid dreams. Safe to conclude that means more brainwave activity and since he has abnormal sleep patterns on the EEG, it's not a jump to make an assumption about the Melatonin causing the fitful sleep.

At 11:30 he had his first. Straight arm, weak moan, lasted less than 10 seconds. It was so fast, Glenn didn't see it, just the aftermath.

And 12:45 he had another, then 2:30, then 5:30, 7:00, 7:30, 8:00 and 8:30.

All of them lasted less than 15 seconds, but having that many felt like forever. Glenn agrees: No more Melatonin.

He is alert and energetic. Breakfast was small but it'll pick up.


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